8.30.2007

word from on high

First I want to tip my hat to my blog partner, Stine, who has been (and remains) a source of courage, inspiration, strength and humor to me. I am always amazed at how much we have to talk about, and how easily that talking flows. What an unexpected bonus born from my in-and -out Weight Watchers journey. I could never go back and still I'd have StineyB, still I'd have this person out there whom I've never met in person but knew in another time, another dimension. Maybe the reality is that we know one another in parallel dimensions, and we can never truly meet lest those parallels run into one another like glowing rung-less ladders, crashing and shattering into infintessimal pieces deep in space. Perhaps I'm being too egocentric. Or I'm stoned. Could be either.

It would take far too long and more minutes than I am allowed to be on a computer at any one time for me to begin unravelling all that has happened to me in the past eight weeks. I would really have to be stoned, or really stoned, to make it through such retelling. But I can say this: I celebrate the smallest things now, or at least try to, like when I'm able to stand in the corner of my bedroom with my eyes closed, feet directly in line with shoulders, hands at my sides, for a full 30 seconds. Or when I go a day without Valium, or wake up without dizziness, or when those blessed moments descend from on high and I temporarily forget that I have VN, I am granted a repreive of seeming normality, and I feel the rush of freedom from illness. S. is charting my nightly physical therapy exercises and three, four second increment increases are HUGE. S. cheers and claps and smiles so big and bright with every second that I tack on to my time upright. And I cheer too, but more inside, because any unnecessary motion in the midst of those exercises is just asking for trouble.

I don't know when I'll drive a car again. I miss it. Yesterday I took a walk with my neighbors and it was wonderful, but I think I overdid it a bit. I constantly have to check myself around that--I am not a good pacer, I don't like slowing down my natural rhythms, shortening my long stride. But I have to. As my physical therapist said, "...there's a very fine line with this condition--you can be too sedentary and not do enough to help push your brain into reworking itself, or you can flood it with too much stimuli and set yourself back a step." I'm working at finding that line.

And I haven't been on a scale since May 21, 2007. Hallelujah and holy mother of God. Let me not be over 250 lbs. I don't know if I'll be able to take it, even with a mantra of "just take it off the table, you can't worry about that right now, you've been ill" even with "you can do this you can do this you can do this" even with it all...

Just imagine what I'd weigh if I'd been drinking throughout this whole ordeal. No, on second thought, don't.

8.14.2007

it was late in the evening


I've wanted to talk about this for a while. Years, really. Afterall, Sophia turns 5 in November, and you'd think I'd have come to terms with her by now.

First, I'm not a perfectionist. Far from it. And I'm also thankful for this body. Daily. And now I'm gonna admit to the pain that's lodged in the right side of my abdomen. It's the pain of a lost illusion (be that physical perfection or great credit or a government that actually takes care of its [middle-incomed and] poor and ill), of things not going as planned, of the kind of detour that makes you forget where you started out and causes you to rechart the course you're on. Sophia, she's part of me, and ultimately, my life's better for the experience. It's just that I wish she wasn't so damn ugly. So obvious. So weird.

All is vanity. It seems so shallow. The funny thing is, vanity has never been my strong suit. So this tension I feel with my Lady the Scar, it's a sign that I've actually started to engage with the surface of my physical self. Vital? Not necessarily. Important? I think so.

And how do I find some peace with this? I don't know that I can ever be fully okay with what went down (understanding your mortality does that, as does the ripple effect of all those hospital bills). I look at my belly and I wonder what I'd be like without this big jutting scar. I have no feeling around the line of the incision-- and maybe that's what I'm like around this-- I can't quite connect to accepting it, to seeing this flaw and accepting it as legacy, as personal lore, as-- believe it or not-- part of how I found the way to better health and fitness. But that's it-- this ugly thing associated with terrible weakness and pain is tied inextricably to finding my strength, my power, my way.

Whoa.

8.11.2007

shells in an envelope

Seems that shedding old ways, old skin, is a bit of a theme here at chewing the fat.

Let me tell you a little bit about my day yesterday...at least what occurred after I posted "up the mountain" here.

I took a nap with S. There were thunderstorms, big booms followed by torrential rains that lasted about 15 minutes, enough to start street flooding. We had plans to have dinner with my parents, who came in yesterday, and we'd decided to try a new Richard Sandoval "concept" restaurant, La Sandia, so we'd planned on going on the early side, around 5:30. Between the nap and getting dressed for dinner, I went to the mailbox and found a letter. A real letter. Addressed to me.


I'd written to a dear friend of mine while she was visiting her mother in Florida. The letter I received yesterday was a response to that letter, but it was OH so much more. It was in the form of a poem--a sestina, no less-- called Letter from a Friend, and before I could even finish it, I was weeping.


You see, everything I wrote about yesterday--all those feelings of being misunderstood, or of people not really caring about me or wanting to know how I really am--much of it was emotional spewage born from frustration and impatience. Though I do believe that most people aren't comfortable around illness, it's too easy for me to forget that there ARE people close to me who get it. Completely. And my letter writing friend is one of those people.


S. was in the basement ironing as I read the poem, stopping in places to breathe, literally, or to let my body shake with sobs. I have not cried that hard in a long long time. At one point, I was leaning on the counter, looking out the window, utterly blown away by what it feels like to be seen, understood, late day-post-thunderstorm light creating haloes in the garde, the air still thick with water. As I stood there, or more to the point leaned there, I felt Daisy come and lay down right at my feet, her body leaning into my legs. This, of course, only made me cry harder. Such intuition, this wonder dog has, such love. And at that moment, I was filled to the very brim with love...I can't explain it in any other terms than that, it was just love, simple and unadorned and plain as rain...and I realized how it felt new, like a revised and better version of what I had felt in the past but more pure. And I was able, at that moment, to actually let in that love, feel it. It wasn't drama disguised as love, or pursuit wearing love's knock-offs, or the all-consuming intensity that comes with overwrought infatuation...this was more like a gift that came when I least expected it, wrapped in a plain envelope with tiny holes created by a handful of delicate sea shells that had been included with the letter. It began:



Dear Meghan,


I sat on a dock this evening as the sun folded

into the gulf, cool coral clouds reflecting light

onto the waving ribbons of the horizon line, shaping

the end of the day as I held the body

of your letter, breathing the words in deeply to the shell

of my own shadows, the sea lapping gently in my ears.



Each stanza a repreive, a nod of affirmation and understanding and yes, hope. It was when I reached this next stanza that I had to put the poem down and let my body release its own water as if a dam deep within me had burst and tears were coming fast, faster, spilling all over the floor and my hands and onto Daisy's soft head.



You write of long days wishing for health, the shelling

out of hope and the slow recovery from pain that shapes

your decisions; the neuronitis a siren; swollen glands like bright flashing lights

on your flesh; the husk you learn to live within; the ear

that betrays you; the skin that hurts; the agonizing folding

walk that staggers your step; the defeat of the body.



What would life be without the battle for the body?

Would we be the people we are without these broken shells?

Pain is in everyone, but symptoms and end results unfold

differently--sometimes anger, resentment, retaliation--for you it shapes

itself into gifted words, the spiral tunnel of an ear

that listens to the world and grieves for its beauty with the poetic grace of shifting light.




When it comes right down to it, I don't know that I can adequately describe what it felt like to receive this blessing of words, an understanding nod to relative experience. I suddenly felt less alone, and had to smile through the tears when I thought of what I'd just posted on the blog--how little credit I give to those in my life!!! It's too easy for me to think that no one "gets" me or my health problems, too easy to resort to the age old way of isolation and self-pity. It's much much harder to open myself to the possibility that I AM loved, seen and accepted, just as I am. Just as I am today, right now, here in this scarred and imperfect body.

I'm sure someone else would read this poem and say "what a beautiful poem" but have little sense of all that lives between each line, or how the repitition of carefully chosen words--the wonderful way of the sestina--can usher in an otherworldly-ness not anticipated or expected by the poet or the reader. Such is the magic of poetic formalism, and the gift that emerges when the writer uses form to create a specific framework. Sometimes it takes the rigor of self-imposed rules to bring what is yet unseen into the light. Yesterday I bathed in that light, drank it willingly, and counted my blessings one by one by one. I think I'm beginning to understand this thing called love. Surprise! This dusty heart knows the real thing when it feels it. It's just been confused by other stimuli that look like love and sort of feel like love but in the end are mere stand-ins for the real thing. I'm learning. The line that keeps running through my head is from a poem by Marge Piercy..."learning to love differently is hard..."

To Have Without Holding

Learning to love differently is hard,
love with the hands wide open,
love with the doors banging on their hinges,
the cupboard unlocked, the windroaring and whimpering in the rooms
rustling the sheets and snapping the blinds
that thwack like rubber bands in an open palm.

It hurts to love wide open
stretching the muscles that feel
as if they are made of wet plaster,
then of blunt knives, then of sharp knives.
It hurts to thwart the reflexes of grab, of clutch;
to love and let go again and again.
It pesters to remember the lover who is not in the bed,
to hold back what is owed in the work that gutters
like a candle in a cave without air,
to love consciously,conscientiously, concretely, constructively.

I can't do it, you say it's killing me,
but you thrive, you glow on the street
like a neon raspberry, you float and sail,
a helium balloon bright bachelor's button blue
and bobbing on the cold and hot winds of our breath,
as we make and unmake in passionate
diastole and systole the rhythm of our unbound bonding,
to have and not to hold, to love with minimized malice,
hunger and anger moment by moment balanced.

8.10.2007

washing me, washing me down

Right now I'm sipping on a little glass of wine, trying to come down from a long long week. I'm tired. I've been tired for a few days now. I have one day off this week (that would be tomorrow), and I already feel torn between my desire to do nothing and the urge to get shit done.

The past few weeks have been a rough patch. A slippery bit. The section of the old school driving game where you car hits the oily bit and veers out of control and does that squealy thing.

There's this theory out there that every 7 years you go through a complete cycle of cell death-- sure some cells die faster-- but the whole shebang will change out every seven years. And those tend to be crucial years: 7. 14. 21. 28. 35 -- and I'll be 42 in December.

It's kind of like the old Saturn return-- but whereas my Saturn return kind of hit me unaware(s), I have this very acute sense of change approaching me-- I can feel something old ( I'm not sure what it is) falling away, making room for something new (I'm not sure what it is).

It's kind of take me to the river drop me in the water washing me down washing me, but it's a little more labored than that. It's a bit more reptilian, like I've gotta pull this old skin off between a couple of rocks, and there might just be some bits that stick to me (armpits, most likely) that will need to fall off unassisted. If I had the time to spend right this moment and I wasn't sodamn tired from my six days of work and 80+ miles, I bet I could find the answer. Just not now. Now I need to sleep.

up the mountain


FOHOless 8/2. Awwww...


Well, on 8/2, I am happy to report, I climbed a mountain. I didn't get to the top, but that's okay. I climbed for about an hour, with a serious elevation gain. The picture above shows the first part of the climb. S. and I then had a picnic in a high-mountain meadow and listened to the wind blow. It was lovely, just lovely. And a serious victory for me.


There was a time, not long ago, when I didn't know if I'd ever be able to hike again. I used to be a huge hiker, especially back in the days when I lived in Montana. I hiked every weekend, often for three, four hours. Logging 15 miles was nothing. I loved the sound of my feet hitting hard, packed trail, the sun through the trees, the roar of a creek nearby. Before I left Montana, I could walk out my door and be in the Rattlesnake in minutes. Once there, I had thousands of acres to play in. I was in pretty great shape.
Now I live in a city, and have for more than 8 years. I have grown to love Denver, but there are times--like during this most recent trip to Crested Butte--when I am certain that living in a city is killing me slowly. I love my neighborhood and my neighbors, and I love the house I share with S. But I want more nature, I want more trees that haven't suffered from so much neglect, I want rivers into which I can toss stones, and aspen stands and no-so-distant views of massive peaks. I want to leave behind all this consumerism, all this waste. I would miss my friends, but these days, so many of them seem caught up in titles and promotions and money and new new new (MORE!!) and none of that speaks to my heart...sure, I have a fancy title, yeah, I make decent money but what I really really want is a little cabin by a creek where I can write and garden and raise lots of animals and watch the seasons turn then turn again. I'm not unhappy, just a little restless.
I'm also tired of explaining myself. This "condition" that I've been battling is unpredictable as weather ("flighty as a feather") and one day I'll be fine and then the next I'll spend too much time on a keyboard or I won't get enough sleep and man, do I pay for it. My energy level is better but I still tire much more quickly than I used to. And I find myself not wanting to engage with many people because they simply don't get it and really, I think deep down, they don't want to. Illness makes people uncomfortable. Plus, I happen to have a couple good friends who like to play the "I've got more health problems than you and I'm great!" card and that's just annoying. Here, let me slice a big chunk out of my thigh and bleed all over your perfectly clean floor and then you'll have to accept the fact that yes, something is wrong with me. This, of course, brings up many old old ugly issues for me...all the health stuff I dealt with as a kid, all the neglect on the part of both my parents and the medical establishment...I want to scream sometimes, rip my arm from its socket in pure frustration, dig deep into my ear canal with a sharpened screw driver and and and...we'll see if you want to continue your little game of Who Really Has Problems? Buck UP! anymore.

But really, that's not the point. The point is that I am doing my best to remain sane around this condition, and sometimes it's hard. And I don't feel like being social because I don't want to have to act like everything is hunky dory. I will answer "fine" to "how are you?" and that will be that, but inside I'm pissed that I can't be honest because no one really wants to know the whole truth. It would be so boring, and hey, isn't this supposed to be a party?

Ah, but the hike. I started there and went off again...the hike is what I am clinging to now, what I reflect on when I really start to lose my footing. I AM getting better. It's a loooooong process. I felt like a million bucks when I came down from that mountain. S. and I made a pact to return in one year's time and do the hike again, this time all the way to the top. We're going to do it, too. We are we are.

8.04.2007

high anxiety and rock-em sock-em psyche robots and stuff

I don't have much going on in my life right now. I know this because this week's w/i felt like a nuisance, like something that could have too much meaning relative to the rest of my life. Or something. Once again, I thought about the fear of a higher (than expected, or desired) number. But I also thought about the way in which this ritual of stepping on the electronic device is a commitment I've made to myself. I've agreed to do this despite the week I've had (any given week), the transgressions or triumphs (any given week). It's a bit of an I LOVE YOU, a way of being this firm, feisty, and loving friend to myself.

Yesterday I was riding home after another long (this time 10 hours, shorthanded) shift, and I felt this bittersweet sense of solitude. Alone time is something I need-- something I sometimes long for, but I need my social connections. I'd thought of stopping by the shop to see if anyone needed a beer, but it was a little too late for that. And so, as I rode up the hill to our 'hood, I also pondered the disappointment of my FOHOless 8/2.

Pondering disappointment is a good thing for me-- it's something I worked hard to learn to do back when I was seeing my therapist in Berkeley. I saw her for about 3 or 4 years, all told, and she saved my life and gave me the tools to enjoy the life before me. I have had moments, over the years, when I've wished I could see her again. But I'm up here, and I had a hard time tracking her down. My friend the internet served me well, and I'm trying to get back in touch with her for a referral to someone up here.

No, I'm not having a meltdown. I'm actually quite solid and stable right now-- and sometimes that's difficult to handle. No crises? No drama? No emergency? Nothing new? That scares me. And I think it scares me because I have to face what I really want, what my soul needs and longs to do. Yeah, so I wanna have a place to find a balance between the part of me that needs to work (for a living, for the benefits, for the pleasure of cooking) and the part that needs to be creative, free, freak-flag-flying. Those two things are often at odds, and it's been my experience that they are highly antagonistic towards each other. Or maybe that's how I make them...